OUR 2 CENTS

The American medical system has failed me for years.

I was 40 years old when my new gynecologist told me I had a lot of fibroids. But since I did not want children we would watch and see if they increased in size and then make needed changes. I always had very painful periods and when I told my old gynecologists I was told to lose weight and to use birth control to eliminate my period hence no pain. No further investigation as to why I had the pain. So I stayed on birth control for 20 years and lived. I only recently stopped using birth control because a scientist who happens to be a family friend had the hypothesis that my other condition (hidradenitis suppurativa) is being affected by the hormones from the birth control, only time will tell.

I have had the condition called hidradenitis suppurativa (huge boils form then burst with gross smelling pus and blood over and over in those same places (usually underarms, butt, groin, back, etc). I have gone to doctors for years trying to get help but nothing helpful. Primary care doctors recommend going to the dermatologist (deals with skin). The dermatologist always follows the recommended protocol which is doxycycline (antibiotic) for years, lose weight and don’t smoke. God forbid I ask for pain medication then the dance begins of the dermatologist doesn’t do pain meds ask the primary doctor. The primary doctor says the dermatologist should prescribe for the condition. And so for years, I  endured the pain from a scale from 1 to 10, 10 being the most painful but I existed for years between 16 to 20. But telling that to doctors they don’t believe that a person can function at that pain level. What they don’t understand is that the human body is extraordinarily and will make the needed adjustments to make that high pain level the new normal and life continues from there. I am not seeking pain meds for anything other than to decrease the pain I have from the huge wounds I have all over my body!

Doctors are the worst they believe they know everything because they have an MD behind their names but I have lived and endured my condition for over 20 years. 20 years is how long I have studied my condition but apparently that does not matter. My goal is to completely heal and I will start saving money because I am going to hire doctors, nurses and others (outside the USA) and their one job will be to study my condition and come up with the cure. I will watch them like a hawk and all theories come through me and once I have the cure I’m going to provide it to others with my condition for a reasonable price and not in the USA since I refuse to go through the bullcrap!

In 2022 my wounds increased so much that I could no longer function independently. My mom connected me with the nurse who took care of my paternal grandfather and I have been under his care ever since. It started with strong antibiotic injections, pain pills, cleaning the wounds, etc. Then I realized that my pain level decreased to between  3 to 6 on the pain scale.  I never remembered a time where my pain was so low! I was in heaven! My medications are mailed to me or someone transports them to me and I am slowly healing.

I am Rossy and I will be the cured and I will help the rest of us suffering in silence. And yes doctors you are all the worst!